Sunday, July 3, 2011

Wyatt pulled the breathing tube out again - July 2

July 2
The first bill came in the mail today for Wyatt’s care at the first hospital, 6 days of NICU there equals a little over $18,000. Wow, that’s less than a week worth of treatment. The hospital he’s at now is more advanced and he’s been there since June 9th… We have his social security number now so hopefully we can get the ball rolling on his bills soon too. We have decent insurance but they still only pay 80% after our deductable. And then certain tests and consultations are questionable whether or not they’ll be covered. It'll be a headache sorting out all of his charges for treatments, specialists, different hospitals, etc.  I have no idea how we’ll manage and this is only the beginning. But for now my approach is, it's just money and I'll fly in any specialist he needs and worry about payments later. We'll do whatever it takes to give him the best possible chances no matter what difficulties we'll face down the road!
230pm, I just received a call from the nurse. Wyatt pulled his breathing tube out again. They have him on the nasal canola for now on 4L and so far he's doing ok. He has been doing better over the last 5 days initiating breaths on his own at a rate of 50+breaths per minute. The nurse warned me though that it may not last since he still had times when he was riding the vent even as recent as this morning. If he stops breathing again of course or if his saturations keep dropping, he'll be put back on the vent, but they're letting him try the nasal at least. I’m not sure if I should be proud of Wyatt or yell at him for pulling the tube out. My husband did say yesterday that Wyatt gave him this look like he was done with the tube. We should have known he was getting ready to pull it again. I’m crossing every finger and toe I have (but I'm prepared that he may not be fully ready)!

Keep up the good work Wyatt!

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