short lived breast feeding progress - June 14

June 14

Slow progress is progress I guess. Wyatt is taking all of his feedings so the IV is not necessary anymore. He latches on to breast feed too, but his O2 levels still drop when he's sleeping. It looks like he’s going to be in NICU for a while yet… He's had a rough day today. His numbers keep dropping after feedings and the doctor said it looks like a coordination issue, meaning the combination of sucking, swallowing and breathing may be too much for him to handle so that his numbers drop afterwards simply because he's worn out. They did blood tests and chest x-rays to rule out everything else and nothing indicates seizures either. So to stay in the side of caution, they are only tube-feeding him for the rest of the night hoping that will help him stabilize. If nothing works, they may have to put him back on the ventilator. I'm not sure what that means in regard to when/if he can come back off the vent… It's going to be a long night. It's hard to accept that we won't be able to get definite answers and that we won't really know the long-term outcome. All we can focus on right now is making sure his numbers dropping while he's sleeping is not caused by seizures and if it is, to stop that from happening to prevent further damage. Hopefully his little brain will figure out a way to work around whatever damage there may be. Whatever happens, we'll just face it head on. There is no choice in the matter. Wyatt is leading by example by fighting hard every single day and night. We have to follow his lead.

Wyatt all curled up