back on the ventilator - June 21

June 21

Last night Wyatt was doing very well on 1LPM at 100% O2, better than he’s ever done before. But suddenly this morning at 530am he had an episode where he stopped breathing all together so they had to bag him and now he is back on the ventilator again. The overnight doctor thought it looked like a seizure so they started him on Phenobarbital. Another MRI is going to be scheduled. The doctor hopes that Wyatt is “just” sleep deprived causing these desaturation episodes to get worse.  It's too early to tell whether or not, and to what extend he will be recover but we have to believe that his little body can find a way to heal itself. It's up to him now!

This emotional roller coaster is horrible. Yesterday we went home ready to throw a party because he was doing better than ever before. And today we're back in disbelief how he can suddenly just stop breathing again. We're barely above water at this point. We don't have the luxury of hanging on to a glimmer of hope because it can change again in an instance.