quick update

Today there are definite signs that Wyatt has some other underlying illness that may be to blame for most if not all of this whole mess. He's been lethargic all day and hasn't been wanting to eat or drink anything. For a while he was even unable to sit up and support himself. The major red flag came when he didn't even move to get blood drawn. They drew just enough blood to recheck all his levels in comparison to yesterday's readings during the long seizure. When attempting to put an IV line in to give the Keppra, he reminded everyone of his breath holding episodes - twice - so those are officially on the EEG now to see if it correlates with the intermittent silent seizures. As the day progressed things went from bad to worse. His heart rate started dipping up and down periodically from the 130s to the 80s and with the cardiac risk factors in mind, that's something to take note of. What that also tells us though is that heart rate dips are one of the Wyatt's few reliable signs that he's sick with something more than just a cold. It could be the flu; it could be a pseudomonas flare up. The flu seems more likely since he has also been running a temperature of 99.3F. In Wyatt's world anything over 98F is cause for concern but 99F are major red flags waving. So priority number one to get his temperature back down with a Tylenol/ibuprofen regiment. To avoid another IV attempt or NG tube, we are also working on syringe feeding him 50-100ml of Pediasure every couple hours. His blood sugar was down to 69 early but we convinced the staff to let us try syringe feeding first before going the more invasive and breath holding risky route. That's my mommy trick to normally get him to take medication and I was able to also give him his first dose of Keppra mixed with the Pediasure. Fingers crossed this method keeps working through the night to keep him hydrated and get some calories into him. The second priority of course it to observe if or how the Keppra is able to manage the intermittent seizure activity. At this point there is no way of knowing when he'll come back around but knowing Wyatt's history, there tend to be 2-3 downhill days before he snaps back out of it.