Just in case I forgot how quickly things can change with CCHS, there's sure to be a reality check hiding around the next corner. This is what having just a cold looked like a week ago:
In the morning he was still running around playing on the play ground (and breathing!!!). Everything seemed fine. We went about our day, had lunch, he took his nap, and played again after his nap. Suddenly one minute to the next, he climbed on my chair and while watching TV suddenly got sweaty, dark circles under his eyes and stopped breathing altogether. Keep in mind, thanks to CCHS, he doesn't feel any of this happening. He doesn't get shortness of breath and therefore, can't tell me he's crashing. On the vent we go and that's where we stayed the rest of the day! The actual cold symptoms didn't even show up until an hour after this incident... Always have to be ready to jump in and manually provide the things that we all take for granted, like breathing!
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