We've been passing a cold around in our family for the last one and half weeks. The 9 year old came home with it from school one day. Unlike me, Wyatt seems to be tolerating it relatively well with just a runny nose, an occasional cough and extra sleep. His Sats have been staying up so there’s no other intervention needed aside from extra saline updrafts and Tylenol every now and then. Now there is a pro to having a trach and a ventilator. A stuffy nose doesn’t stop Wyatt from breathing. In fact, not to be gross here, the vent blows the junk right out. (We have to keep a sense of humor around here.) Hopefully by this weekend, we will all be back to normal…
Aside from that, we're in the process of switching home nursing companies. We figure at this point, considering 8 out of the last 12 days were not staffed, it can only get better. Giving up on nursing altogether wouldn't be a wise choice. We don't really need it right now while Wyatt only eats, poops and sleeps but give it another few months and we'll wish we have that second set of hands when he moves around all over the place and may even pull on his trach out intentionally just to get his way or to see how fast we can run. I can't wait for the toddler years if he's going to be anything like our 2 year old… I did finally receive the AC Power Adaptor for the CO2Monitor and this month the supply order was actually right the first time. Maybe they're getting tired of me calling them every day to fix their mistakes. I'm still waiting to see if my insurance can just buy the blood pressure tubing and cuff though before moving any further with the DME company on that issue. We'll see. We may have to buy it ourselves if nothing else. Whether or not to switch DME companies, we’ll see how they cooperate this month before we make that decision. It’s just such a hassle But then again, our current DME company has been a hassle all along… Oh let’s not forget the fun from last night. Wyatt pulled his trach out in his sleep! Out of the worst possible times to pick for that damn thing to come out, in his sleep is just not good. I still don’t know how he did it. We check several times a day to make sure his trach tie is on tight. Now that he can roll over though, he only sleeps on his stomach so I guess a quick movement of his head from one side to the other with the circuit in just the “right” position where it’s slightly pulling, that could do it. The weird thing was that you couldn’t even hear that is was out. Normally it makes a distinct sound. He was sound asleep though, no weird noises were coming from his ventilator or himself, and suddenly his Pulse Ox alarm went off because his Sats just started dropping into the 80s. After a few seconds, he came back up to 100 so I didn’t think much of it. I checked on him and he wasn’t moving around which could have explained a false Pulse Ox alarm. But then a few seconds later his Sats dropped back down into the 80 again. So when I flipped him over, sure enough, the trach tie was intact but his trach was just hanging out on his chest. Way to get me to hold my breath at 1am, Wyatt. Aside from getting mad at me for waking him up, he was fine though.
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